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Maverick Health Intelligence: Only What Matters on Health Information Policy (article)

Privacy & Cybersecurity

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Maverick Health Intelligence: Only What Matters on Health Information Policy (article)

September 3, 2020

The Federal Trade Commission (FTC) has at least one friend, and no, it is not Mark Zuckerberg -- her name is Alice. On a webinar to explain the eHealth Initiative and Center for Democracy & Technology’s Draft Consumer Privacy Framework for Health Data, eHI’s VP and Senior Counsel Alice Leiter announced that the new framework is an effort to “help out the FTC” so the agency is not overwhelmed by having to police every element of health data that is not regulated by HIPAA. The purpose is to propose a comprehensive consumer health data protection scheme, like GDPR or CCPA, and to complement or go further than other self-regulatory codes of conduct (CARIN Alliance, FTC Best Practices for Mobile Health App Developers, Network Advertising Initiative). The draft tries hard to define the ever-elusive concept of “consumer health data” and proposes specific protections and natural exceptions (i.e., research, to prevent death or injury). With Robert Wood Johnson Foundation funds, this was a serious effort with serious experts contributing serious time -- even the Better Business Bureau is being considered as a possible home for the new membership entity that vets, enrolls, and monitors its members. Maybe take a look at the draft and comment by September 25, 2020 -- just email FTC’s BFF at alice@ehidc.org. Alice may be the best friend the FTC has had in a long time.

 

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