August 26, 2020 – Today the eHealth Initiative & Foundation (eHI) and the Center for Democracy and Technology (CDT) released A Draft Consumer Privacy Framework for Health Data. The Framework includes a description of the health data that warrant protection, as well as the standards and rules that should govern them. The Framework also includes a self-regulatory model that would hold companies accountable to these standards and rules. The work is the first output of a collaborative effort addressing gaps in legal protections for consumer health data outside of the Health Insurance Portability and Accountability Act’s (HIPAA) coverage. The collaboration was funded through a grant by the Robert Wood Johnson Foundation.

The public is invited to review the draft framework and offer constructive feedback by Friday, September 25, 2020 in the form below.