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Draft Consumer Privacy Framework for Health Data

Privacy & Security

  • Privacy & Security

      Exploring the ways in which we are protecting the privacy, security, and confidentiality of patient and health system information.

Draft Consumer Privacy Framework for Health Data

August 26, 2020

August 26, 2020 – Today the eHealth Initiative & Foundation (eHI) and the Center for Democracy and Technology (CDT) released A Draft Consumer Privacy Framework for Health Data. The Framework includes a description of the health data that warrant protection, as well as the standards and rules that should govern them. The Framework also includes a self-regulatory model that would hold companies accountable to these standards and rules. The work is the first output of a collaborative effort addressing gaps in legal protections for consumer health data outside of the Health Insurance Portability and Accountability Act’s (HIPAA) coverage. The collaboration was funded through a grant by the Robert Wood Johnson Foundation.

The public is invited to review the draft framework and offer constructive feedback by Friday, September 25, 2020 in the form below. 

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