OVERVIEW
Hosted by Executives for Health Innovation (EHI) and the Center for Democracy & Technology (CDT), this webinar was the culmination of a project spearheaded by EHI and CDT and generously funded by the Robert Wood Johnson Foundation (RWJF), which aims to protect consumer data that is both held and used by companies that are not bound by the obligations of HIPAA.

The EHI and CDT Consumer Privacy Framework for Health Data (the Framework) was Released in February 2021. The report addresses the current gaps in legal protections and outlines how non-HIPAA-covered health data should be used, accessed, and disclosed.

A second round of funding from RWJF led to the development of two follow-up reports, The Case for Accountability: Protecting Health Data Outside the Healthcare System, authored by EHI, and Placing Equity at the Center of Health Care & Technology, authored by CDT.

What You’ll Hear:
EHI and CDT gave an overview and discussion of these two reports, in addition to an announcement of BBB National Programs as the organization that has been chosen by EHI to house and run a self-regulatory data use program.

Read the EHI Report and Learn More About the Self-Regulatory Data Use Program »