Join us for a webinar introducing our Draft Consumer Privacy Framework for Health Data. Funded by the Robert Wood Johnson Foundation and in partnership with the Center of Democracy and Technology, this Framework would increase protections for consumer health data that falls outside the protection of HIPAA.

The Framework will be posted in the eHI Resource Center following the webinar, and we will solicit public feedback on all aspects of it for 30 days.

Speakers:

Andy Crawford
Policy Counsel, Privacy & Data
CDT

Andrew Crawford is a Policy Counsel with CDT’s Data and Privacy Project. Prior to joining CDT, Andrew was Counsel to U.S. Senator Chris Coons (D-DE). In this role, Andrew primarily focused on Judiciary Committee matters, including, privacy, technology, law enforcement, nominations, immigration, and telecommunications. Andrew holds a B.A. from New York University and a J.D. from Villanova University.

Mary Engle
Executive Vice President, Policy
BBB National Programs

Prior to joining BBB National Mrograms, Mary served as Associate Director of the Division of Advertising Practices at the Federal Trade Commission (FTC). 

Engle directed the FTC’s Division of Advertising Practices for almost 19 years, enforcing truth-in-advertising principles for national advertising matters, including claims about food, dietary supplements, medical devices, alcohol, tobacco, and broadband. She also examined social media and digital technology marketing practices. Her investigations and law enforcement actions in this area helped create new policy and standards that are now used to govern influencer marketing, native advertising, and privacy cases.

Engle held several management positions at the FTC and served as an advisor to a commissioner and two directors of the Bureau of Consumer Protection. During her government career, she received several awards for her work including the Meritorious Executive Rank Award from President Obama for accomplishments in the management of U.S. government programs and the FTC Chairman’s Award for the Commission’s 2000 Media Violence Study and Report.

Before joining the FTC, Engle practiced law with a firm in Washington, D.C. She is a graduate of Harvard University and received her J.D. from the University of Virginia.

Alice Leiter
Vice President and Senior Counsel
eHealth Initiative

Alice is a health regulatory lawyer with a specialty in health information privacy law and policy. She previously worked as a Senior Associate at the law firm Hogan Lovells, where she worked with clients on Medicare and Medicaid pricing and reimbursement. Alice spent several years as policy counsel at two different non-profit organizations, the National Partnership for Women & Families and the Center for Democracy & Technology. She currently sits on the DC HIE Policy Board, as well as the boards of Beauvoir School, Educare DC, and DC Greens, the latter of which she chairs. She received her B.A. in human biology from Stanford University and her J.D. from the Georgetown University Law Center. Alice and her husband, Michael, live in Washington, D.C. with their four children.

Deven McGraw
General Counsel and Chief Regulatory Officer
Ciitizen

Deven McGraw is General Counsel and Chief Regulatory Officer for Ciitizen, a consumer health technology start-up.  Previously she directed U.S. health privacy and security as Deputy Director, Health Information Privacy at the HHS Office for Civil Rights and Chief Privacy Officer (Acting) of the Office of the National Coordinator for Health IT.  Widely recognized for her expertise in health privacy, she directed the Health Privacy Project at the Center for Democracy & Technology for six years and led the privacy and security policy work for the HITECH Health IT Policy Committee.  She also served as the Chief Operating Officer of the National Partnership for Women and Families.  She advised health industry clients on HIPAA compliance and data governance while a partner at Manatt, Phelps & Phillips, LLP.  Deven graduated magna cum laude from Georgetown University Law Center and has a Masters of Public Health from Johns Hopkins University.